@prefix dcterms: <http://purl.org/dc/terms/> .
@prefix dcat: <http://www.w3.org/ns/dcat#> .
@prefix foaf: <http://xmlns.com/foaf/0.1/> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .
@prefix ldp: <http://www.w3.org/ns/ldp#> .

<https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8> a dcat:Resource,
    dcat:Dataset;
  dcat:keyword "quality of care"@en, "epidemiology"@en, "neuromuscular diseases"@en,
    "NMD"@en;
  dcat:theme <http://publications.europa.eu/resource/authority/data-theme/HEAL>;
  <http://healthdataportal.eu/ns/health#healthTheme> <http://www.wikidata.org/entity/Q2246789>;
  <http://healthdataportal.eu/ns/health#maxTypicalAge> "95"^^xsd:nonNegativeInteger;
  <http://healthdataportal.eu/ns/health#minTypicalAge> "0"^^xsd:nonNegativeInteger;
  <http://healthdataportal.eu/ns/health#numberOfRecords> "57970"^^xsd:nonNegativeInteger;
  <http://healthdataportal.eu/ns/health#populationCoverage> "The population targeted by the BNMDR comprised all individuals in Belgium suffering from a neuromuscular disease and who signed the informed consent. For some diseases, we observe a bias towards more severe patients in need of the multidisciplary care from the reference centers (and thus in convention)"@en;
  dcterms:accrualPeriodicity <http://publications.europa.eu/resource/authority/frequency/ANNUAL>;
  <https://w3id.org/dpv#hasPurpose> <datasetPurpose:1775139695805-8b131cbb-0>;
  dcterms:temporal [ a dcterms:PeriodOfTime;
      dcat:startDate "2011-01-01"^^xsd:date
    ];
  dcterms:alternative "BNMDR"@en;
  dcat:distribution <https://public-fdp.sciensano.be/distribution/1c5e5e85-d64a-425e-90e6-d7e33d1625dd>;
  <http://www.w3.org/ns/adms#sample> <https://public-fdp.sciensano.be/sample/6c5e42cf-8db9-4989-91bd-1c31bdf2f27c>,
    <https://public-fdp.sciensano.be/sample/94dcbaa1-4b64-43c1-afe6-edd57b698d75>;
  <https://w3id.org/dpv#hasPersonalData> <https://w3id.org/dpv/dpv-pd#Gender>, <https://w3id.org/dpv/dpv-pd#AgeRange>,
    <https://w3id.org/dpv/dpv-pd#Country>, <https://w3id.org/dpv/dpv-pd#Geographic>;
  <http://healthdataportal.eu/ns/health#numberOfUniqueIndividuals> "11647"^^xsd:nonNegativeInteger;
  <http://www.w3.org/2000/01/rdf-schema#label> "Belgian Neuromuscular Diseases Registry";
  dcterms:description "Le projet BNMDR collecte chaque année des données auprès des 7 centres de référence belges spécialisés dans les maladies neuromusculaires (NMRC) afin de surveiller la prévalence et l'évolution de 62 groupes de maladies neuromusculaires. Il soutient également la qualité des soins dans les NMRC grâce à l'analyse comparative et facilite le recrutement de patients pour les essais cliniques."@fr,
    "The BNMDR project annually collects data from the 7 Belgian neuromuscular reference centers (NMRCs) to monitor the prevalence and course of 62 neuromuscular disease groups. It also supports the quality of care in the NMRCs through benchmarking and facilitates patient recruitment for clinical trials."@en,
    "Het BNMDR-project verzamelt jaarlijks gegevens van de 7 Belgische neuromusculaire referentiecentra (NMRC's) om de prevalentie en het verloop van 62 neuromusculaire ziektegroepen te monitoren. Het ondersteunt ook de kwaliteit van de zorg in de NMRC's door middel van benchmarking en vergemakkelijkt de werving van patiënten voor klinische proeven."@nl;
  dcterms:publisher [ a foaf:Agent;
      dcterms:type <http://healthdataportal.eu/resource/authority/publisher-type/nationalPublicHealthInstitute>;
      <http://data.europa.eu/m8g/contactPoint> [ a <http://data.europa.eu/m8g/ContactPoint>;
          <http://data.europa.eu/m8g/contactPage> <https://sciensano.be>;
          <http://data.europa.eu/m8g/email> <mailto:info@sciensano.be>
        ];
      foaf:name "Sciensano";
      dcterms:description "Sciensano is the Belgian national public health institute."@en
    ];
  dcterms:title "Belgian Neuromuscular Diseases Registry"@en, "Registre belge des maladies neuromusculaires"@fr,
    "Belgisch register voor neuromusculaire aandoeningen"@nl;
  dcterms:accessRights <http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC>;
  dcterms:identifier "http://sciensanofdp.darwinproject.be:8080/dataset/80e66838-ed19-4adc-b6d1-3433258f0639"^^xsd:anyURI;
  dcterms:language <http://publications.europa.eu/resource/authority/language/ENG>,
    <http://publications.europa.eu/resource/authority/language/FRA>, <http://publications.europa.eu/resource/authority/language/NLD>;
  dcterms:license <http://purl.org/NET/rdflicense/cc-zero1.0>;
  <https://w3id.org/fdp/fdp-o#metadataIdentifier> <https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8#identifier>;
  <https://w3id.org/fdp/fdp-o#metadataIssued> "2026-07-20T23:53:26.385Z"^^xsd:dateTime;
  <https://w3id.org/fdp/fdp-o#metadataModified> "2026-07-23T23:02:03.399Z"^^xsd:dateTime;
  <http://semanticscience.org/resource/SIO_000628> <https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8/metrics/445c0a70d1e214e545b261559e2842f4>,
    <https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8/metrics/5d27e854a9e78eb3f663331cd47cdc13>;
  dcterms:isPartOf <https://public-fdp.sciensano.be/catalog/d542d9c8-21d0-46d5-81fa-323fb7cae015>;
  <http://technical.fdp/modified> "2026-07-20T23:44:52.000Z"^^xsd:dateTime;
  <http://technical.fdp/sciensanoTheme> <http://www.wikidata.org/entity/Q929833>;
  <http://data.europa.eu/r5r/applicableLegislation> <http://data.europa.eu/eli/reg/2025/327/oj>;
  <http://healthdataportal.eu/ns/health#hdab> <hdab:1>;
  <http://healthdataportal.eu/ns/health#healthCategory> <http://healthdataportal.eu/resource/authority/healthcategories/PHDR>;
  dcterms:provenance <datasetProvenance:1775139695805-9175173d-0>;
  dcterms:spatial <http://data.europa.eu/nuts/code/BE>;
  dcterms:type <http://publications.europa.eu/resource/authority/dataset-type/PERSONAL_DATA>;
  <http://technical.fdp/sciensanoOrg> "1110";
  <http://www.w3.org/ns/adms#identifier> <datasetAdmsIdentifier:1775139695806-0dbbec38-5>,
    <datasetAdmsIdentifier:1775139695806-263c2d0d-0>, <datasetAdmsIdentifier:1775139695806-2ed9dc30-6>,
    <datasetAdmsIdentifier:1775139695806-697689b9-1>, <datasetAdmsIdentifier:1775139695806-b3fae11b-2>,
    <datasetAdmsIdentifier:1775139695806-b54b2e2d-3>, <datasetAdmsIdentifier:1775139695806-de97af88-7>,
    <datasetAdmsIdentifier:1775139695806-f6c315ea-4>, <datasetAdmsIdentifier:1775139695807-02630ad3-8>,
    <datasetAdmsIdentifier:1775139695807-b01492d5-9>, <https://intranet-fdp.sciensano.be/dataset/cd853def-cef7-4274-87d7-0c49bd88ff1e#admsIdentifier>;
  dcat:contactPoint <datasetContactPoint:1775139695805-1bcef80c-1>, <datasetContactPoint:1775139695805-af2ce2f2-0>;
  dcterms:conformsTo <https://public-fdp.sciensano.be/profile/2f08228e-1789-40f8-84cd-28e3288c3604> .

<https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8/metrics/445c0a70d1e214e545b261559e2842f4>
  <http://semanticscience.org/resource/SIO_000332> <https://www.ietf.org/rfc/rfc3986.txt>;
  <http://semanticscience.org/resource/SIO_000628> <https://www.ietf.org/rfc/rfc3986.txt> .

<https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8/metrics/5d27e854a9e78eb3f663331cd47cdc13>
  <http://semanticscience.org/resource/SIO_000332> <https://www.wikidata.org/wiki/Q8777>;
  <http://semanticscience.org/resource/SIO_000628> <https://www.wikidata.org/wiki/Q8777> .

<https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8#identifier>
  a <http://purl.org/spar/datacite/Identifier>;
  dcterms:identifier "https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8" .

<http://data.europa.eu/nuts/code/BE> a dcterms:Location .

<http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC> a dcterms:RightsStatement .

<http://publications.europa.eu/resource/authority/data-theme/HEAL> a <http://www.w3.org/2004/02/skos/core#Concept>;
  <http://www.w3.org/2004/02/skos/core#prefLabel> """
                                        Health"""@en .

<http://publications.europa.eu/resource/authority/dataset-type/PERSONAL_DATA> a <http://www.w3.org/2004/02/skos/core#Concept>;
  <http://www.w3.org/2004/02/skos/core#prefLabel> """
                                        Personal Data"""@en .

<http://publications.europa.eu/resource/authority/language/ENG> a dcterms:LinguisticSystem .

<http://publications.europa.eu/resource/authority/frequency/ANNUAL> a dcterms:Frequency .

<http://data.europa.eu/eli/reg/2025/327/oj> a <http://data.europa.eu/eli/ontology#LegalResource> .

<http://healthdataportal.eu/resource/authority/healthcategories/PHDR> a <http://www.w3.org/2004/02/skos/core#Concept>;
  <http://www.w3.org/2004/02/skos/core#prefLabel> """
                                        Population-based health data registries (public health registries)"""@en .

<http://publications.europa.eu/resource/authority/language/FRA> a dcterms:LinguisticSystem .

<http://publications.europa.eu/resource/authority/language/NLD> a dcterms:LinguisticSystem .

<https://w3id.org/dpv/dpv-pd#Gender> a <https://w3id.org/dpv#PersonalData> .

<https://w3id.org/dpv/dpv-pd#AgeRange> a <https://w3id.org/dpv#PersonalData> .

<https://w3id.org/dpv/dpv-pd#Country> a <https://w3id.org/dpv#PersonalData> .

<datasetAdmsIdentifier:1775139695806-0dbbec38-5> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/ns/adms#schemaAgency> "fair.healthdata.be";
  <http://www.w3.org/2004/02/skos/core#notation> "https://fair.healthdata.be/dataset/4a34b8d6-5ee7-41ef-9278-5a5c0c39012c"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695806-263c2d0d-0> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/ns/adms#schemaAgency> "fair.healthdata.be";
  <http://www.w3.org/2004/02/skos/core#notation> "https://fair.healthdata.be/dataset/4a34b8d6-5ee7-41ef-9278-5a5c0c39012c"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695806-2ed9dc30-6> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/ns/adms#schemaAgency> "Health Information Portal";
  <http://www.w3.org/2004/02/skos/core#notation> "https://www.healthinformationportal.eu/health-information-sources/belgian-neuromuscular-diseases-registry"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695806-697689b9-1> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/ns/adms#schemaAgency> "Health Information Portal";
  <http://www.w3.org/2004/02/skos/core#notation> "https://www.healthinformationportal.eu/health-information-sources/belgian-neuromuscular-diseases-registry"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695806-b3fae11b-2> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/2004/02/skos/core#notation> "http://10.5.8.138:8080/dataset/6749ca4d-9252-49bb-89fc-7f2704edc08a"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695806-b54b2e2d-3> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/ns/adms#schemaAgency> "EMA";
  <http://www.w3.org/2004/02/skos/core#notation> "https://catalogues.ema.europa.eu/node/4047/administrative-details"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695806-de97af88-7> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/ns/adms#schemaAgency> "EMA";
  <http://www.w3.org/2004/02/skos/core#notation> "https://catalogues.ema.europa.eu/node/4047/administrative-details"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695806-f6c315ea-4> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/2004/02/skos/core#notation> "https://sciensano.healthdataportal.eu:443/dataset/2f63a0ea-1698-412c-8cbe-7702953c8645"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695807-02630ad3-8> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/2004/02/skos/core#notation> "http://10.5.8.138:8080/dataset/6749ca4d-9252-49bb-89fc-7f2704edc08a"^^xsd:anyURI .

<datasetAdmsIdentifier:1775139695807-b01492d5-9> a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/2004/02/skos/core#notation> "https://sciensano.healthdataportal.eu:443/dataset/2f63a0ea-1698-412c-8cbe-7702953c8645"^^xsd:anyURI .

<datasetContactPoint:1775139695805-1bcef80c-1> a <http://www.w3.org/2006/vcard/ns#Kind>,
    <http://www.w3.org/2006/vcard/ns#Organization>;
  <http://www.w3.org/2006/vcard/ns#fn> "Sciensano";
  <http://www.w3.org/2006/vcard/ns#hasEmail> <mailto:BNMDR@sciensano.be>;
  <http://www.w3.org/2006/vcard/ns#organisationName> "Sciensano";
  <http://www.w3.org/2006/vcard/ns#organisationUnit> "1110 - Health Services Research" .

<datasetContactPoint:1775139695805-af2ce2f2-0> a <http://www.w3.org/2006/vcard/ns#Kind>,
    <http://www.w3.org/2006/vcard/ns#Organization>;
  <http://www.w3.org/2006/vcard/ns#fn> "Sciensano";
  <http://www.w3.org/2006/vcard/ns#hasEmail> <mailto:BNMDR@sciensano.be>;
  <http://www.w3.org/2006/vcard/ns#organisationName> "Sciensano";
  <http://www.w3.org/2006/vcard/ns#organisationUnit> "1110 - Health Services Research" .

<datasetProvenance:1775139695805-9175173d-0> a dcterms:ProvenanceStatement;
  <http://www.w3.org/2000/01/rdf-schema#label> "Clinicians from 7 neuromuscular reference centres collect the data."@en .

<datasetPurpose:1775139695805-8b131cbb-0> a <https://w3id.org/dpv#Purpose>;
  dcterms:description "To monitor the prevalence and course of 62 neuromuscular disease groups. It also supports the quality of care in the NMRCs through benchmarking and facilitates patient recruitment for clinical trials."@en .

<http://www.wikidata.org/entity/Q2246789> a <http://www.w3.org/2004/02/skos/core#Concept>;
  <http://www.w3.org/2004/02/skos/core#prefLabel> "neuromuscular disease"@en .

<https://intranet-fdp.sciensano.be/dataset/cd853def-cef7-4274-87d7-0c49bd88ff1e#admsIdentifier>
  a <http://www.w3.org/ns/adms#Identifier>;
  <http://www.w3.org/2004/02/skos/core#notation> "https://intranet-fdp.sciensano.be/dataset/cd853def-cef7-4274-87d7-0c49bd88ff1e"^^xsd:anyURI .

<https://w3id.org/dpv/dpv-pd#Geographic> a <https://w3id.org/dpv#PersonalData> .

<https://public-fdp.sciensano.be/distribution/> a ldp:DirectContainer;
  dcterms:title "Distributions";
  ldp:membershipResource <https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8>;
  ldp:hasMemberRelation dcat:distribution;
  ldp:contains <https://public-fdp.sciensano.be/distribution/1c5e5e85-d64a-425e-90e6-d7e33d1625dd> .

<https://public-fdp.sciensano.be/sample/> a ldp:DirectContainer;
  dcterms:title "Samples";
  ldp:membershipResource <https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8>;
  ldp:hasMemberRelation <http://www.w3.org/ns/adms#sample>;
  ldp:contains <https://public-fdp.sciensano.be/sample/6c5e42cf-8db9-4989-91bd-1c31bdf2f27c>,
    <https://public-fdp.sciensano.be/sample/94dcbaa1-4b64-43c1-afe6-edd57b698d75> .

<https://public-fdp.sciensano.be/analytics/> a ldp:DirectContainer;
  dcterms:title "Analytics";
  ldp:membershipResource <https://public-fdp.sciensano.be/dataset/c337f884-f716-4db5-acde-563e8f9c2fd8>;
  ldp:hasMemberRelation <http://healthdataportal.eu/ns/health#analytics> .

<https://public-fdp.sciensano.be/profile/2f08228e-1789-40f8-84cd-28e3288c3604> <http://www.w3.org/2000/01/rdf-schema#label>
    "Dataset Profile" .